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PGP Participant Survey
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Responses submitted 7/31/2012 0:33:17.
Show responses
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| Timestamp |
7/31/2012 0:33:17 |
| Year of birth |
70-79 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
I have been diagnosed with cancer 4 times with three primary cancers. In 1996 I was diagnosed with stage IIIB ductal carcinoma in my left breast. I was treated at Stanford with ACF followed by radiation and 6 months of CMF. The tumor disappeared without surgery. Seven years later it recurred and I had an immediate mastectomy followed by Taxotere, Hereceptin and Cysplatin. In 2002 I was diagnosed with Stage 1 Lung Cancer and the midlobe of my right lung was removed. In 2009 I had a malignant colon polyp removed. |
| Disease/trait: Onset |
50-59 years of age |
| Disease/trait: Rarity |
Fairly common |
| Disease/trait: Severity |
Moderate severity disease |
| Disease/trait: Relative enrollment |
No |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
No |
| Disease/trait: Documentation |
Yes |
| Disease/trait: Documentation description |
I'm willing to upload medical records. If you can access Stanford and Palo Alto Foundation systems I can release files directly to you. Otherwise I'll request a direct data transfer if possible. If that doesn't work I'll see what is possible. |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
United States |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
United States |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
Yes |
| Enrollment of parents |
Maybe |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 5/2/2014 17:28:37.
Show responses
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| Timestamp |
5/2/2014 17:28:37 |
| Have you ever been diagnosed with one of the following conditions? |
Colon polyps, Lung cancer, Breast cancer |
| Other condition not listed here? |
anemia |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 5/2/2014 17:32:29.
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| Timestamp |
5/2/2014 17:32:29 |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 5/2/2014 17:33:05.
Show responses
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| Timestamp |
5/2/2014 17:33:05 |
| Have you ever been diagnosed with any of the following conditions? |
Iron deficiency anemia |
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PGP Trait & Disease Survey 2012: Nervous System
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Responses submitted 5/2/2014 17:33:46.
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| Timestamp |
5/2/2014 17:33:46 |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 5/2/2014 17:51:38.
Show responses
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| Timestamp |
5/2/2014 17:51:38 |
| Have you ever been diagnosed with one of the following conditions? |
Hyperopia (Farsightedness), Age-related hearing loss |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 5/2/2014 17:52:28.
Show responses
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| Timestamp |
5/2/2014 17:52:28 |
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PGP Trait & Disease Survey 2012: Respiratory System
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Responses submitted 5/2/2014 17:53:55.
Show responses
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| Timestamp |
5/2/2014 17:53:55 |
| Have you ever been diagnosed with any of the following conditions? |
Chronic sinusitis, Allergic rhinitis |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 5/2/2014 17:54:56.
Show responses
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| Timestamp |
5/2/2014 17:54:56 |
| Have you ever been diagnosed with any of the following conditions? |
Dental cavities, Gingivitis, Canker sores (oral ulcers), Gastroesophageal reflux disease (GERD), Hiatal hernia, Diverticulosis |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 5/2/2014 17:55:36.
Show responses
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| Timestamp |
5/2/2014 17:55:36 |
| Have you ever been diagnosed with any of the following conditions? |
Urinary tract infection (UTI) |
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PGP Trait & Disease Survey 2012: Skin and Subcutaneous Tissue
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Responses submitted 5/2/2014 17:56:33.
Show responses
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| Timestamp |
5/2/2014 17:56:33 |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 5/2/2014 17:57:26.
Show responses
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| Timestamp |
5/2/2014 17:57:26 |
| Have you ever been diagnosed with any of the following conditions? |
Osteoarthritis, Bunions |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 5/2/2014 17:58:09.
Show responses
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| Timestamp |
5/2/2014 17:58:09 |