PGP Participant Survey
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Responses submitted 4/25/2012 16:26:36.
Show responses
|
Timestamp |
4/25/2012 16:26:36 |
Year of birth |
21-29 years |
Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
Severe disease or rare genetic trait |
Yes |
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Allergies-paternal link |
Disease/trait: Onset |
10-19 years of age |
Disease/trait: Rarity |
Uncommon |
Disease/trait: Severity |
Moderate severity disease |
Disease/trait: Relative enrollment |
Yes, I have one or more affected relatives and they are already enrolled |
Disease/trait: Diagnosis |
Yes |
Disease/trait: Genetic confirmation |
No |
Disease/trait: Documentation |
Yes |
Disease/trait: Documentation description |
Results of allergy blood tests - 2009, 2010 (environmental) and future |
Sex/Gender |
Female |
Race/ethnicity |
White |
Maternal grandmother: Country of origin |
United States |
Paternal grandmother: Country of origin |
United States |
Paternal grandfather: Country of origin |
United States |
Maternal grandfather: Country of origin |
United States |
Enrollment of relatives |
Yes |
Enrollment of older individuals |
No |
Enrollment of parents |
Maybe |
Enrolled relatives [Aunts/Uncles] |
1 |
Are all your enrolled relatives linked to your PGP profile? |
Yes |
Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
Have you used the PGP web interface to record a designated proxy? |
Yes |
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
Uploaded health records: Update status |
No |
Uploaded health records: Extensiveness |
1 |
Blood sample |
Yes |
Saliva sample |
Yes |
Microbiome samples |
Yes |
Tissue samples from surgery |
No |
Tissue samples from autopsy |
Yes |
PGP Participant Survey
|
Responses submitted 4/25/2012 16:38:10.
Show responses
|
Timestamp |
4/25/2012 16:38:10 |
Year of birth |
21-29 years |
Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
Severe disease or rare genetic trait |
Yes |
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
allergies (food, medicine, environmental)
triple-X (possible) |
Disease/trait: Onset |
Congenital / present at birth |
Disease/trait: Rarity |
Uncommon |
Disease/trait: Severity |
Moderate severity disease |
Disease/trait: Relative enrollment |
Maybe |
Disease/trait: Diagnosis |
No |
Sex/Gender |
Female |
Race/ethnicity |
White |
Maternal grandmother: Country of origin |
United States |
Paternal grandmother: Country of origin |
United States |
Paternal grandfather: Country of origin |
United States |
Maternal grandfather: Country of origin |
United States |
Enrollment of relatives |
Yes |
Enrollment of older individuals |
No |
Enrollment of parents |
Maybe |
Enrolled relatives [Aunts/Uncles] |
1 |
Are all your enrolled relatives linked to your PGP profile? |
Yes |
Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
Have you used the PGP web interface to record a designated proxy? |
Yes |
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
Uploaded health records: Update status |
No |
Uploaded health records: Extensiveness |
1 |
Blood sample |
Yes |
Saliva sample |
Yes |
Microbiome samples |
Yes |
Tissue samples from surgery |
No |
Tissue samples from autopsy |
Yes |