PGP Participant Survey
|
Responses submitted 11/25/2011 15:03:50.
Show responses
|
Timestamp |
11/25/2011 15:03:50 |
Year of birth |
30-39 years |
Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
Severe disease or rare genetic trait |
No |
Maternal grandmother: Country of origin |
Latvia |
Paternal grandmother: Country of origin |
Germany |
Paternal grandfather: Country of origin |
Germany |
Maternal grandfather: Country of origin |
Latvia |
Enrollment of relatives |
No |
Enrollment of older individuals |
No |
Enrollment of parents |
No |
Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
Have you used the PGP web interface to record a designated proxy? |
Yes |
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
Blood sample |
Yes |
Saliva sample |
Yes |
Microbiome samples |
Yes |
Tissue samples from surgery |
Yes |
Tissue samples from autopsy |
Yes |
PGP Participant Survey
|
Responses submitted 1/17/2012 13:50:39.
Show responses
|
Timestamp |
1/17/2012 13:50:39 |
Year of birth |
30-39 years |
Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
Severe disease or rare genetic trait |
No |
Sex/Gender |
Male |
Race/ethnicity |
White |
Maternal grandmother: Country of origin |
Latvia |
Paternal grandmother: Country of origin |
Germany |
Paternal grandfather: Country of origin |
Germany |
Maternal grandfather: Country of origin |
Latvia |
Enrollment of relatives |
No |
Enrollment of older individuals |
No |
Enrollment of parents |
No |
Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
Have you used the PGP web interface to record a designated proxy? |
Yes |
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
Blood sample |
Yes |
Saliva sample |
Yes |
Microbiome samples |
Yes |
Tissue samples from surgery |
Yes |
Tissue samples from autopsy |
Yes |
PGP Participant Survey
|
Responses submitted 3/1/2012 15:34:19.
Show responses
|
Timestamp |
3/1/2012 15:34:19 |
Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
Severe disease or rare genetic trait |
No |
Sex/Gender |
Male |
Race/ethnicity |
White |
Maternal grandmother: Country of origin |
Latvia |
Paternal grandmother: Country of origin |
Germany |
Paternal grandfather: Country of origin |
Germany |
Maternal grandfather: Country of origin |
Latvia |
Enrollment of relatives |
No |
Enrollment of older individuals |
No |
Enrollment of parents |
No |
Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
Have you used the PGP web interface to record a designated proxy? |
No |
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
Blood sample |
Yes |
Saliva sample |
Yes |
Microbiome samples |
Yes |
Tissue samples from surgery |
Yes |
Tissue samples from autopsy |
Yes |
PGP Participant Survey
|
Responses submitted 7/15/2012 23:16:47.
Show responses
|
Timestamp |
7/15/2012 23:16:47 |
Year of birth |
30-39 years |
Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
Severe disease or rare genetic trait |
No |
Sex/Gender |
Male |
Race/ethnicity |
White |
Maternal grandmother: Country of origin |
Latvia |
Paternal grandmother: Country of origin |
Germany |
Paternal grandfather: Country of origin |
Germany |
Maternal grandfather: Country of origin |
Latvia |
Enrollment of relatives |
No |
Enrollment of older individuals |
No |
Enrollment of parents |
No |
Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
Have you used the PGP web interface to record a designated proxy? |
Yes |
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
Blood sample |
Yes |
Saliva sample |
Yes |
Microbiome samples |
Yes |
Tissue samples from surgery |
Yes |
Tissue samples from autopsy |
Yes |
PGP Participant Survey
|
Responses submitted 10/24/2012 0:55:23.
Show responses
|
Timestamp |
10/24/2012 0:55:23 |
Year of birth |
30-39 years |
Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
Severe disease or rare genetic trait |
Yes |
Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Marian syndrome |
Disease/trait: Onset |
30-39 years of age |
Disease/trait: Rarity |
Uncommon |
Disease/trait: Severity |
Not applicable |
Disease/trait: Relative enrollment |
No |
Disease/trait: Diagnosis |
Yes |
Disease/trait: Genetic confirmation |
Yes |
Disease/trait: Documentation |
No |
Sex/Gender |
Male |
Race/ethnicity |
White |
Maternal grandmother: Country of origin |
Latvia |
Paternal grandmother: Country of origin |
Germany |
Paternal grandfather: Country of origin |
Germany |
Maternal grandfather: Country of origin |
Latvia |
Enrollment of relatives |
No |
Enrollment of older individuals |
No |
Enrollment of parents |
No |
Have you uploaded genetic data to your PGP participant profile? |
Yes, I have uploaded genetic data |
Have you used the PGP web interface to record a designated proxy? |
Yes |
Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
Uploaded health records: Update status |
Yes |
Blood sample |
Yes |
Saliva sample |
Yes |
Microbiome samples |
Yes |
Tissue samples from surgery |
Yes |
Tissue samples from autopsy |
Yes |
PGP Trait & Disease Survey 2012: Cancers
|
Responses submitted 10/24/2012 0:56:11.
Show responses
|
Timestamp |
10/24/2012 0:56:11 |
Other condition not listed here? |
Marfan syndrome |
PGP Trait & Disease Survey 2012: Blood
|
Responses submitted 10/24/2012 0:57:06.
Show responses
|
Timestamp |
10/24/2012 0:57:06 |
Other condition not listed here? |
Marfan syndrome |
PGP Trait & Disease Survey 2012: Vision and hearing
|
Responses submitted 10/24/2012 0:57:38.
Show responses
|
Timestamp |
10/24/2012 0:57:38 |
Have you ever been diagnosed with one of the following conditions? |
Color blindness |
Other condition not listed here? |
Marfan syndrome |
PGP Trait & Disease Survey 2012: Circulatory System
|
Responses submitted 10/24/2012 0:57:58.
Show responses
|
Timestamp |
10/24/2012 0:57:58 |
Other condition not listed here? |
Marfan syndrome |
PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
|
Responses submitted 10/24/2012 0:58:22.
Show responses
|
Timestamp |
10/24/2012 0:58:22 |
Other condition not listed here? |
Marfan syndrome |
PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
|
Responses submitted 10/24/2012 0:58:41.
Show responses
|
Timestamp |
10/24/2012 0:58:41 |
Other condition not listed here? |
Marfan syndrome |
PGP Trait & Disease Survey 2012: Digestive System
|
Responses submitted 10/24/2012 0:59:24.
Show responses
|
Timestamp |
10/24/2012 0:59:24 |
Other condition not listed here? |
Marfan syndrome |
PGP Trait & Disease Survey 2012: Genitourinary Systems
|
Responses submitted 10/24/2012 0:59:47.
Show responses
|
Timestamp |
10/24/2012 0:59:47 |
Other condition not listed here? |
Marfan syndrome |
PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
|
Responses submitted 10/24/2012 1:00:13.
Show responses
|
Timestamp |
10/24/2012 1:00:13 |
Have you ever been diagnosed with any of the following conditions? |
Marfan syndrome |