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PGP Participant Survey
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Responses submitted 11/25/2011 15:03:50.
Show responses
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| Timestamp |
11/25/2011 15:03:50 |
| Year of birth |
30-39 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
No |
| Maternal grandmother: Country of origin |
Latvia |
| Paternal grandmother: Country of origin |
Germany |
| Paternal grandfather: Country of origin |
Germany |
| Maternal grandfather: Country of origin |
Latvia |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
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Responses submitted 1/17/2012 13:50:39.
Show responses
|
| Timestamp |
1/17/2012 13:50:39 |
| Year of birth |
30-39 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
No |
| Sex/Gender |
Male |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
Latvia |
| Paternal grandmother: Country of origin |
Germany |
| Paternal grandfather: Country of origin |
Germany |
| Maternal grandfather: Country of origin |
Latvia |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
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Responses submitted 3/1/2012 15:34:19.
Show responses
|
| Timestamp |
3/1/2012 15:34:19 |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
No |
| Sex/Gender |
Male |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
Latvia |
| Paternal grandmother: Country of origin |
Germany |
| Paternal grandfather: Country of origin |
Germany |
| Maternal grandfather: Country of origin |
Latvia |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
No |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
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Responses submitted 7/15/2012 23:16:47.
Show responses
|
| Timestamp |
7/15/2012 23:16:47 |
| Year of birth |
30-39 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
No |
| Sex/Gender |
Male |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
Latvia |
| Paternal grandmother: Country of origin |
Germany |
| Paternal grandfather: Country of origin |
Germany |
| Maternal grandfather: Country of origin |
Latvia |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
No, but I plan to |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Participant Survey
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Responses submitted 10/24/2012 0:55:23.
Show responses
|
| Timestamp |
10/24/2012 0:55:23 |
| Year of birth |
30-39 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
Marian syndrome |
| Disease/trait: Onset |
30-39 years of age |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Not applicable |
| Disease/trait: Relative enrollment |
No |
| Disease/trait: Diagnosis |
Yes |
| Disease/trait: Genetic confirmation |
Yes |
| Disease/trait: Documentation |
No |
| Sex/Gender |
Male |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
Latvia |
| Paternal grandmother: Country of origin |
Germany |
| Paternal grandfather: Country of origin |
Germany |
| Maternal grandfather: Country of origin |
Latvia |
| Enrollment of relatives |
No |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Have you uploaded genetic data to your PGP participant profile? |
Yes, I have uploaded genetic data |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
Yes |
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PGP Trait & Disease Survey 2012: Cancers
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Responses submitted 10/24/2012 0:56:11.
Show responses
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| Timestamp |
10/24/2012 0:56:11 |
| Other condition not listed here? |
Marfan syndrome |
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PGP Trait & Disease Survey 2012: Blood
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Responses submitted 10/24/2012 0:57:06.
Show responses
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| Timestamp |
10/24/2012 0:57:06 |
| Other condition not listed here? |
Marfan syndrome |
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PGP Trait & Disease Survey 2012: Vision and hearing
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Responses submitted 10/24/2012 0:57:38.
Show responses
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| Timestamp |
10/24/2012 0:57:38 |
| Have you ever been diagnosed with one of the following conditions? |
Color blindness |
| Other condition not listed here? |
Marfan syndrome |
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PGP Trait & Disease Survey 2012: Circulatory System
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Responses submitted 10/24/2012 0:57:58.
Show responses
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| Timestamp |
10/24/2012 0:57:58 |
| Other condition not listed here? |
Marfan syndrome |
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PGP Trait & Disease Survey 2012: Musculoskeletal System and Connective Tissue
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Responses submitted 10/24/2012 0:58:22.
Show responses
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| Timestamp |
10/24/2012 0:58:22 |
| Other condition not listed here? |
Marfan syndrome |
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PGP Trait & Disease Survey 2012: Endocrine, Metabolic, Nutritional, and Immunity
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Responses submitted 10/24/2012 0:58:41.
Show responses
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| Timestamp |
10/24/2012 0:58:41 |
| Other condition not listed here? |
Marfan syndrome |
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PGP Trait & Disease Survey 2012: Digestive System
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Responses submitted 10/24/2012 0:59:24.
Show responses
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| Timestamp |
10/24/2012 0:59:24 |
| Other condition not listed here? |
Marfan syndrome |
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PGP Trait & Disease Survey 2012: Genitourinary Systems
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Responses submitted 10/24/2012 0:59:47.
Show responses
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| Timestamp |
10/24/2012 0:59:47 |
| Other condition not listed here? |
Marfan syndrome |
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PGP Trait & Disease Survey 2012: Congenital Traits and Anomalies
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Responses submitted 10/24/2012 1:00:13.
Show responses
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| Timestamp |
10/24/2012 1:00:13 |
| Have you ever been diagnosed with any of the following conditions? |
Marfan syndrome |